Deleso A. Alford | Akateeminen Kirjakauppa

This eye-opening book reveals what has been hidden in plain sight-not just "his story," but "her story" as seen through the experiences of women directly impacted by the U.S. Public Health Service Syphilis Study at Tuskegee.


* Explores the narratives of women standing at the intersection of research, both domestically and internationally, by shedding light on the direct impact of women in the USPHS Syphilis Study at Tuskegee (1932-1972) and the recently discovered narrative of the USPHS and Pan American Sanitary Bureau Syphilis study in Guatemala (1946-1948)

* Addresses a historically marginalized and devalued segment of U.S. society, namely women in general and black women in particular, especially in relation to healthcare, research, and medical education

* Broadens the discourse on alternate realities that impact best practices on research ethics

* Underscores the need for more explicit guidance and informed consent relative to research on human subjects to avoid people being subjected to research without their knowledge

* Serves as a vehicle through which to foster discussion of the negative legacy of the USPHS Syphilis Study at Tuskegee and encourage action to establish a positive legacy of inclusion and protection of people who voluntarily participate in research