Ethical Considerations for Research on Housing-Related Health Hazards Involving Children

explores the ethical issues posed when conducting research designed to identify,

understand, or ameliorate housing-related health hazards among children. Such

research involves children as subjects and is conducted in the home and in communities.

It is often conducted with children in low-income families given the disproportionate

prevalence of housing-related conditions such as lead poisoning, asthma,

and fatal injuries among these children. This book emphasizes five key elements to

address the particular ethical concerns raised by these characteristics: involving the

affected community in the research and responding to their concerns; ensuring that

parents understand the essential elements of the research; adopting uniform federal

guidelines for such research by all sponsors (Subpart D of 45 CFR 46); providing guidance

on key terms in the regulations; and viewing research oversight as a system with

important roles for researchers, IRBs and their research institutions, sponsors and regulators

of research, and the community.

Table of Contents


Front Matter
Executive Summary
1 Introduction
2 Housing and Health
3 Grimes v. Kennedy Krieger Institute: Revisiting the Ethical Issues
4 Characteristics of Housing Health Hazards Research
5 Community Involvement
6 Parental Permission, Consent, and Payment
7 Researchers' Responsibilities
8 Research Oversight
References
Appendix Biographical Sketches of Committee Members and Staff