Successful development of clinical data as an engine for knowledge generation has the potential to transform health and health care in America. As part of its Learning Health System Series, the Roundtable on Value & Science-Driven Health Care hosted a workshop to discuss expanding the access to and use of clinical data as a foundation for care improvement.


Table of Contents


Front Matter
Summary
1 Clinical Data as the Basic Staple of the Learning Health System
2 U.S. Healthcare Data Today: Current State of Play
3 Changing the Terms: Data System Transformation in Progress
4 Healthcare Data: Public Good or Private Property?
5 Healthcare Data as a Public Good: Privacy and Security
6 Creating a Next-Generation Data Utility: Building Blocks and the
Action Agenda
7 Engaging the Public
8 Clinical Data as the Basic Staple of Health Learning: Ideas for
Action
Appendixes
Appendix A: Workshop Agenda
Appendix B: Biographical Sketches of Workshop Participants
Appendix C: Workshop Attendee List
Appendix D: The IOM Committee on Health Research and the Privacy of
Health Information: The HIPAA Privacy Rule
Other Publications in the Learning Healthcare System Series