Patients diagnosed with Alzheimer's disease and related dementias (ADRD) rely on family members, their community, and the health care system for progressively increasing support over the course of their disease. These people receive care through a frequently siloed health care system across hospitals, nursing homes, ambulatory care settings, and long-term care settings, as well as community- and home-based care. As the number of people living with a diagnosis of ADRD continues to grow, so does the need to provide better support for these people and their caregivers. The National Institute on Aging (NIA) Division of Behavioral and Social Research suggests that organizational behavior change will be needed for health care systems to integrate all of the services and supports required to provide high-quality care for people with ADRD.


NIA sponsored a workshop hosted by the National Academies of Sciences, Engineering, and Medicine to explore mechanisms to improve the quality of care for people living with ADRD and the potential of innovative payment models to incentivize health care systems to make the necessary systemic changes. The workshop convened a diverse array of experts in fields including nursing, geriatrics, health care economics, health care services research, quality measurement, social work, medical ethics, law, health care finance, and health care policy. This publication summarizes the presentation and discussion of the workshop.

Table of Contents


Front Matter
1 Introduction
2 Keynote Presentations
3 Defining Quality
4 Transforming the Role of Payment System Incentives to Improve Quality
5 Evidence on the Effect of Existing Models and Research and Innovation to Address Gaps in Data and Evidence
6 Creating Change
7 Final Thoughts
Appendix A: References
Appendix B: Statement of Task
Appendix C: Workshop Agenda
Appendix D: Biographical Sketches of the Speakers and Committee Members
Appendix E: Acronyms and Abbreviations